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Epilepsy Parent support group

Epilepsy Parent support group

A supportive community for parents of children with epilepsy, focused on sharing experiences, developing emotional skills, and navigating the journey together.

Join our Epilepsy community!

Starts 25th January, 2025

6 Zoom sessions | Saturdays | 75 minutes

Confidential | Small group, 4-6 people

Group Type: Support Group

Includes 3 Free Peer Calls*

Led by Neuropsychologist Dr. Cathlyn Niranjana Bennett

Program Fee - INR 3500 (India) | USD 90 (Outside India) | Get 30% off if you buy for two

View full details

Goals of the Group

•Foster emotional resilience through shared experiences and coping strategies.
• Equip parents with practical skills for effective communication and advocacy.
• Build a supportive community to reduce isolation and empower parents.

Who is the group for?

The group is designed for parents of children with epilepsy seeking emotional support and practical skills. It welcomes anyone navigating the unique challenges of caregiving while fostering a sense of community.

Glimpse of the regime

Cluster 1

Session 1: Introduction and Navigating Emotions

1. Icebreaker Activity
Foster initial connections among participants.
Discuss confidentiality and group expectations.

2. Emotional Landscape
Mapping of common emotional responses to caregiving(fear, frustration, isolation, parental guilt)
Reframing negative thoughts and fostering self-compassion.

3. Coping with Fear and Anxiety:
Discuss common fears related to seizures and their impact on daily life.
Introduction to mindfulness practices to reduce stress and anxiety.

Cluster 2

Session 2: Balancing Caregiving with Personal Life
Managing Relationships:Discuss how parenting a child with epilepsy impacts relationships with partners, family, and friends.
Explore strategies for effective communication and seeking support from loved ones

Explore strategies for juggling caregiving responsibilities with personal needs, work, and social life.
Share tips for time management and setting boundaries.

Cluster 3

Session 3:Communication & Advocacy
Explore common difficulties in communicating with healthcare providers and educational institutions and build successful strategies.
Teach parents how to effectively advocate for themselves and their needs as caregivers.

Session 4: Coping with Crises - Immediate management and beyond
Preparing for crises:
Develop effective coping strategies for high-stress situations.
Discuss practical steps to take during a seizure and how to handle emergency situations.

Explore long-term planning for potential changes in the child’s condition and how to adapt as needs evolve.
Discuss building a comprehensive support network for emergencies.

Cluster 4

Session 5: Transitioning to New Life Stages:
Address the challenges of transitioning from childhood to adolescence or adulthood.
Discuss planning for educational and life transitions, including discussions about health and safety.

Fostering independence:
Discuss ways to encourage independence in children with epilepsy while ensuring their safety.
Share resources and strategies for age-appropriate responsibilities.

Session 6: Finding Joy and Normalcy:
Encouraging participants to share ways they create joy and normalcy in their family life.
Discuss the importance of family traditions and activities that foster connection.

Learn from us & from each other

  • There was so much pent up inside me ever since we learnt of our child's diagnosis. It feels like a huge burden has been lifted off my chest.

    Arushi, 35

  • This is the most beautiful thing to have happened to me in so many years. I didn't think support of this sort was available and out there! I'm just so glad.

    Saavi, 41

  • This is my safe space. I can come in and talk about everything that haunts me at night and I know I will find a patient, empathetic ear over here. So thankful for this community.

    Surmesh, 38

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Meet your Facilitator

Dr. Cathlyn Niranjana Bennett

Dr. Niranjana Bennett is a consultant neuropsychologist with a passion for enhancing neuropsychological well-being. She specializes in neurofeedback training, neuropsychological assessments, and interventions. Dr. Bennett completed her doctoral program at the prestigious National Institute of Mental Health and Neurosciences (NIMHANS) in Bengaluru, India. Additionally, she has completed a Biofeedback Certification International Alliance (BCIA) accredited course in EEG neurofeedback training at the Behavioral Medicine Research and Training Foundation, Saybrook University, USA.

Dr. Bennett has considerable experience in designing evidence-based modules aimed at improving cognitive and emotional well-being by leveraging insights from neuroscience. Her work includes supporting individuals with epilepsy and their caregivers, equipping them to navigate life with epilepsy successfully. An accomplished professional, Dr. Bennett has also published extensively in the field, contributing to advancements in neuropsychology and well-being.

FAQs

What are SoulUp Groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

How is confidentiality maintained in Groups?

Confidentiality in Support Groups is maintained using secure meeting links and enabling waiting rooms to control participant access. Participants are bound by mutual confidentiality clause within the group. and sessions are not recorded without explicit consent.

Are Group sessions done on video?

Yes, all group sessions are conducted on video via Zoom.

While participants are allowed to use pseudonyms - they need to be on video to make the most of the session.

What is SoulUp's refund policy on Groups?

1. After you have registered for the group and you'd like to opt out:
- Full refund if you cancel 30 days before the group start date.
- 50% refund if you cancel 16-30 days before the group start date.
- No refund if you cancel 0-15 days before the group start date.

2. If SoulUp cancels a group, we will refund the entire signup fee.

3. If SoulUp reschedules a group by more than 2 weeks, we will inform you and give you an option to opt out and get a full refund.

4. SoulUp reserves the right to remove participants from a group if found unsuitable to the group. In such cases participants are given the option of claiming the pro-rata amount left as a refund or using it for another service on SoulUp.

Can I use multiple discounts while signing up for a group?

You can use only 1 type discount while signing up for a group. Cash backs cannot be coupled with discounts either.

* Are FREE Peer calls available to everyone who signs-up for this group?

You can book 3 Peer calls for FREE as part of signing up for this group.

Please note: This is only available to first-time participants of a SoulUp group (those trying a SoulUp group for the first time).

How long has SoulUp been around?

SoulUp was founded in 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are not only effective but also fun, social, and challenging.

Find multiple groups relevant? Bundle up & save!

Save on 2 Groups

What you get:

  1. Sign up for ANY 2 SoulUp groups (except for those priced INR 4000 or more)
  2. For users in India, price of 2 group pack is INR 5500 (instead of INR 7000)
  3. For users outside India, price of 2 group pack is INR 8000 (instead of INR 10,000)
  4. Valid for 6 months: Book slots in any 2 groups within 6 months once you purchase the pack.
Get for 20% off  

Save on 3 Groups

What you get:

  1. Sign up for ANY 3 SoulUp groups (except for those priced INR 4000 or more)
  2. For users in India, price of 3 group pack is INR 7500 (instead of INR 10,500)
  3. For users outside India, price of 3 group pack is INR 11,500 (instead of INR 15,000)
  4. Valid for 12 months: Book slots in any 3 groups within 12 months once you purchase the pack.
Get for 30% off  

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Caregiving support | Epilepsy

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More about Support Groups & Therapy Groups:

1. What is an online therapy or support group?

Online therapy groups or support groups are structured, therapist-led sessions where participants gather virtually to discuss and work on specific mental health or personal growth topics.

These groups offer a supportive environment and help members learn coping strategies and relevant techniques from the therapist. Participants offer each other encouragement, share advice, and provide emotional support, helping one another feel less isolated.

2. What benefits can I expect from joining an online therapy group or support group?

Participants in online therapy groups often experience improved mental health, a greater sense of connection, and enhanced coping skills. Group therapy provides structured guidance from a therapist, which can lead to valuable insights and personal growth.

3. How does online group therapy compare to one-on-one therapy?

One-on-one therapy is personalized, focusing solely on your needs, which can be ideal for in-depth, private work with a therapist.

Online group therapy, however, offers a sense of community and shared experience. In addition to learning from the therapist, members get to connect with others facing similar challenges. Group settings provide diverse perspectives and reduce isolation, which participants find valuable.

4. Are online groups effective?

Yes, studies show that online groups can be as effective as in-person groups. The online format provides convenience and accessibility while offering the same structured therapeutic benefits, especially for those who prefer the comfort of their home environment.

5. Will I have to share my personal journey in the group?

Sharing is encouraged but never forced. Participants are free to share only what they feel comfortable with, and many find that opening up gradually is natural and helpful for their own growth.

6. How do online therapy groups or support groups handle difficult emotions that arise?

The therapist leading the group is trained to manage challenging emotions. They provide tools and strategies for coping, helping participants process feelings safely.

7. Can I attend online therapy groups if I’m already in individual therapy?

Yes, many people find that group therapy superbly complements individual therapy, providing additional insights and social support, thus accelerating their healing. Also, users often join group therapy for a topic that they are not focusing on in their individual therapy sessions. Often, therapists themselves recommend their clients to group therapy for a specific area of their life.

8. How do I know if a support group is right for me?

If you’re looking for shared experiences and emotional support rather than structured therapeutic guidance, a support group may be ideal. Otherwise, consider a therapy group for a more structured approach.

You can also join more than one group if you feel it will benefit you, especially if each group focuses on a different aspect of your mental health journey.