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Caregiving support | Epilepsy

Caregiving support | Epilepsy

A supportive community for parents of children with epilepsy, focused on sharing experiences, developing emotional skills, and navigating the journey together.

Join our Epilepsy WhatsApp community!

Starts 19th October, 2024

6 Zoom sessions | Saturdays | 75 minutes

Confidential | Small group, 4-6 people

Includes 3 Free Peer Calls*

Led by a therapist

Program Fee - INR 3500 (India) | USD 90 (Outside India) | Get 30% off if you buy for two

View full details

Goals of the Group

•Foster emotional resilience through shared experiences and coping strategies.
• Equip parents with practical skills for effective communication and advocacy.
• Build a supportive community to reduce isolation and empower parents.

Who is the group for?

The group is designed for parents of children with epilepsy seeking emotional support and practical skills. It welcomes anyone navigating the unique challenges of caregiving while fostering a sense of community.

Glimpse of the regime

Cluster 1

Session 1: Introduction and Navigating Emotions

1. Icebreaker Activity
Foster initial connections among participants.
Discuss confidentiality and group expectations.

2. Emotional Landscape
Mapping of common emotional responses to caregiving(fear, frustration, isolation, parental guilt)
Reframing negative thoughts and fostering self-compassion.

3. Coping with Fear and Anxiety:
Discuss common fears related to seizures and their impact on daily life.
Introduction to mindfulness practices to reduce stress and anxiety.

Cluster 2

Session 2: Balancing Caregiving with Personal Life
Managing Relationships:Discuss how parenting a child with epilepsy impacts relationships with partners, family, and friends.
Explore strategies for effective communication and seeking support from loved ones

Explore strategies for juggling caregiving responsibilities with personal needs, work, and social life.
Share tips for time management and setting boundaries.

Cluster 3

Session 3:Communication & Advocacy
Explore common difficulties in communicating with healthcare providers and educational institutions and build successful strategies.
Teach parents how to effectively advocate for themselves and their needs as caregivers.

Session 4: Coping with Crises - Immediate management and beyond
Preparing for crises:
Develop effective coping strategies for high-stress situations.
Discuss practical steps to take during a seizure and how to handle emergency situations.

Explore long-term planning for potential changes in the child’s condition and how to adapt as needs evolve.
Discuss building a comprehensive support network for emergencies.

Cluster 4

Session 5: Transitioning to New Life Stages:
Address the challenges of transitioning from childhood to adolescence or adulthood.
Discuss planning for educational and life transitions, including discussions about health and safety.

Fostering independence:
Discuss ways to encourage independence in children with epilepsy while ensuring their safety.
Share resources and strategies for age-appropriate responsibilities.

Session 6: Finding Joy and Normalcy:
Encouraging participants to share ways they create joy and normalcy in their family life.
Discuss the importance of family traditions and activities that foster connection.

Learn from us & from each other

  • There was so much pent up inside me ever since we learnt of our child's diagnosis. It feels like a huge burden has been lifted off my chest.

    Arushi, 35

  • This is the most beautiful thing to have happened to me in so many years. I didn't think support of this sort was available and out there! I'm just so glad.

    Saavi, 41

  • This is my safe space. I can come in and talk about everything that haunts me at night and I know I will find a patient, empathetic ear over here. So thankful for this community.

    Surmesh, 38

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Caregiving support | Epilepsy

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FAQs

What are SoulUp Groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group through free-flowing conversation coupled with some simple exercises or activities —with the goal of sharing openly, connecting to your emotions and learning specific skills.

Check Out. Participants share what they're taking away from the session.

How is confidentiality maintained in Groups?

Confidentiality in Support Groups is maintained using secure meeting links and enabling waiting rooms to control participant access. Participants are bound by mutual confidentiality clause within the group. Also, sessions are not recorded without explicit consent.

Are Group sessions done on video?

Yes, all group sessions are conducted on video via Zoom. While participants are allowed to use pseudonyms - they need to be on video to make the most of the session.

What is SoulUp's refund policy on groups?

1. After you have registered for the group and you'd like to opt out:
- Full refund if you cancel 30 days before the group start date.
- 50% refund if you cancel 16-30 days before the group start date.
- No refund if you cancel 0-15 days before the group start date.

2. If SoulUp cancels a group, we will refund the entire signup fee.

3. If SoulUp reschedules a group by more than 2 weeks, we will inform you and give you an option to opt out and get a full refund.

4. SoulUp reserves the right to remove participants from a group if found unsuitable to the group. In such cases participants are given the option of claiming the pro-rata amount left as a refund or using it for another service on SoulUp.

* Are FREE Peer calls available to everyone who signs-up for this group?

You can book 3 Peer calls for FREE as part of signing up for this group.

Please note: This is only available to first-time participants of a SoulUp group (those trying a SoulUp group for the first time).

Can I use multiple discounts while signing up for a group?

You can use only 1 type discount while signing up for a group. Cash backs cannot be coupled with discounts either.

How long has SoulUp been around?

SoulUp was founded in Feb 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are effective, but also fun, social, and challenging.

Find multiple groups relevant? Bundle up & save!

Save on 2 Groups

What you get:

  1. Sign up for ANY 2 SoulUp groups (except for those priced INR 4000 or more)
  2. For users in India, price of 2 group pack is INR 5500 (instead of INR 7000)
  3. For users outside India, price of 2 group pack is INR 8000 (instead of INR 10,000)
  4. Valid for 6 months: Book slots in any 2 groups within 6 months once you purchase the pack.
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Save on 3 Groups

What you get:

  1. Sign up for ANY 3 SoulUp groups (except for those priced INR 4000 or more)
  2. For users in India, price of 3 group pack is INR 7500 (instead of INR 10,500)
  3. For users outside India, price of 3 group pack is INR 11,500 (instead of INR 15,000)
  4. Valid for 12 months: Book slots in any 3 groups within 12 months once you purchase the pack.
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