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Caring for Kids with Complex Medical Needs

Caring for Kids with Complex Medical Needs

Support group as you navigate challenges of caring for children who require complex medical care.

Starts March 25th, 2023

8 sessions | Conducted every Saturday 10:30 AM

Small group, 6-8 people

75-minute online video conversations

Led by Shivangi Anil

Program Fee - INR 2500 for India-based participants | INR 3500 for participants outside India

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Goals of the Group

Taking care of a child with complex medical needs is a difficult task, especially if you have to try and deal with guilt, pain, and fear on your own. Being in an extended state of hypervigilance to ensure that the child has everything taken care of and that they aren’t in any pain can be a very stressful thing to go through.

This group aims to create a safe space for parents to share their journeys - the highs and the lows and also talk about how different people cope with different aspects of caring in Indian setting. Whether you want a safe space to vent or to learn some tried and tested ways of coping. We have something for everyone.

Who is the group for?

This is a support group for caregivers of kids living with a physical disability or a chronic medical condition in India. Could be a parent, sibling or a relative.

What will we talk about?

• Struggles of being a primary caregiver and impact on daily life
• Navigating medical systems better
• Sharing the load- who can help you care for your child?
• Cultivating independent pockets and boundary settings
• Managing your own mental health and taking out time for yourself
• Working through the guilt of not doing enough
• Balancing safety and independence for your child
• Navigating inclusive education
• Navigating social isolation and exclusion
• Talking to your child about their disability or medical journey
• Finding joy and connection despite the stress
• The parent journey over time.

  • I am so grateful to have joined the group. I feel more connected to others, less alone in my experience, and supported. To someone in my situation who was considering SoulUp, I’d simply say: DO IT

    Vipul

    Caring for a kid with epilepsy

  • Thank you everyone for creating such a supportive community here. I’m so freaking grateful!

    Animesh

    Caring for a kid with Cerebral Palsy

  • It was comforting to hear that other people went through similar things. And hearing what was good, what was bad, and what they would change.

    Samiya

    Caring for a kid with CKD Stage 4

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Meet your Facilitator

Shivangi Anil

Shivangi is a psychotherapist who works with Indian adults globally to support them achieve better mental health. Some of the concerns she specializes in include workplace mental health, burnout , stress, relationship conflict, anger management, body image concerns, emotional wellness, depression and anxiety

Shivangi holds a bachelor's degree in Psychology from Lady Shri Ram college for Women and a Masters degree in Clinical Psychology from Ambedkar University, Delhi. She is registered with the counselors council of India. While she is trained in a variety of therapeutic techniques including cognitive behavioral therapy, rational emotive behavioral therapy, she considers narrative practice and solution focused brief therapy her home base. Shivangi is trauma informed, queer and disability affirmative in her practice.

Shivangi happens to live with Cerebral Palsy quadriplegia. As an adult living with a disability in India, Shivangi is an advocate not just for mental health but also inclusion and disability rights. She hopes to create a space to talk about all things mental health, disability and its intersection through her support groups.

When not working with clients or reading about mental health concerns, you can find her binge watching videos on skincare and curly hair care or a bollywood movie.

FAQs

What are soulUp groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group in a free-flowing conversation—with the goal of sharing openly, talking honestly, and deep emotional connection.

Check Out. Participants share what they're taking away from the session.

What am i going to get out of this?

Participants say that they feel heard, understood, more in control, and a feeling that you’ve got people rooting for you. By talking about your emotions and what's going on in your life, you'll realise that you're not alone and get ideas for how to improve your situation.

How long has soulup been around?

SoulUp was founded in Feb 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are effective, but also fun, social, and challenging.

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