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Living Better with Epilepsy

Living Better with Epilepsy

A unique support group to discuss the emotional challenges and possible solutions around living with epilepsy.

Starts 4th Feb, 2023

8 sessions | Conducted every Saturday 3 PM

Small group, 6-8 people

75-minute online video conversations

Led by Carol D'Souza

Program Fee - INR 2500 for India-based participants | INR 3500 for participants outside India

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Goals of the Group

• Understanding and exploring your feelings around your condition.
• Meeting like-minded individuals to share and bond with, while discussing both challenges and possible solutions.
• Building confidence and self acceptance to help achieve life goals.

Who is the group for?

• Adults (18-40) who have been living with/ have been recently diagnosed with epilepsy.
• Those who have experienced the lack of emotional support for navigating life with epilepsy.

What will we talk about?

A. The Stigma
• Exploring the attached taboo - fears and insecurities that stem from it
• Resolving fatigue from being looked at or treated differently
• Uncovering underlying resentment against people who are healthy.

B. Challenges in daily life
• Exploring struggles and frustrations of daily life
• Managing pent up anger of having limitations with things you can/cannot do
• Coping with the stress and fear of where and when the next seizure will happen, looming fear of what happens next (Fear of SUDEP)
• Challenges of treatment and side effects of life long medication

C. Family and Love
• Exploring support and the lack of it from caregiver/spouse/family
• Discussing the impact on relationships - romantic and otherwise"

  • I feel the gratitude! I was feeling a little isolated not knowing too many people who also have epilepsy and being able to communicate has really made me feel connected and supported.

    Misha

    Had epilepsy surgery

  • We’re all in different stages of this, yah know? Some are seizure free, some have loved ones with it, and some are currently in the trenches for the first time and yet it seems like y’all come together to support.

    Rohan

    2 years seizure free

  • Thank you everyone for creating such a supportive community here. I’m so freaking grateful!

    Matsya

    Surgeon who has epielpsy

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Meet your Facilitator

Carol D'Souza

Carol D'Souza has over 20 years of experience in facilitating Support Group Meetings and in Counselling & Psychotherapy.

She has been invited to speak at the W.H.O. as well as to numerous national and international epilepsy congresses and at epilepsy awareness programs.

Carol is a published researcher who has been awarded the prestigious Ambassador for Epilepsy award in 2009 by the International League Against Epilepsy and the International Bureau for Epilepsy.

She is the editor of Conquering Epilepsy (2 editions) and she is grateful that her experience with epilepsy has enabled her help countless people with epilepsy.

FAQs

What are soulUp groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group in a free-flowing conversation—with the goal of sharing openly, talking honestly, and deep emotional connection.

Check Out. Participants share what they're taking away from the session.

What am i going to get out of this?

Participants say that they feel heard, understood, more in control, and a feeling that you’ve got people rooting for you. By talking about your emotions and what's going on in your life, you'll realise that you're not alone and get ideas for how to improve your situation.

How long has soulup been around?

SoulUp was founded in Feb 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are effective, but also fun, social, and challenging.

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Living Better with Epilepsy