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Living Better with Epilepsy

Living Better with Epilepsy

A unique support group to discuss the emotional challenges and possible solutions around living with epilepsy.

Join our Epilepsy WhatsApp community!

Starts 9th November, 2024

6 Zoom sessions | Every Saturday | 75 minutes

Confidential | Small group, 4-6 people

Group Type: Support Group

Includes 3 Free Peer Calls*

Led by a neuropsychologist

Program Fee - INR 3500 (India) | USD 90 (Outside India) | Get 30% off if you buy for two

View full details

Goals of the Group

• Understanding and exploring your feelings around your condition.
• Meeting like-minded individuals to share and bond with, while discussing both challenges and possible solutions.
• Building confidence and self acceptance to help achieve life goals.

Who is the group for?

• Adults (18-50) who have been living with/ have been recently diagnosed with epilepsy.
• Those who have experienced the lack of emotional support for navigating life with epilepsy.

What will we talk about?

Session 1: Understanding Epilepsy and Overcoming Stigma
Understanding Epilepsy:
Types of epilepsy
Causes and triggers
Myths and misconceptions

Addressing Stigma:
Challenging negative stereotypes
Building self-confidence and acceptance

Session 2: Managing Risk Factors and Improving Compliance
Risk Factor Management:
Identifying personal risk factors

Enhancing Compliance:
Creating a personalized medication schedule
Addressing common barriers to compliance
Managing side effects effectively

Saying No:
Assertive communication techniques
Setting boundaries and prioritizing self-care

Session 3: Dance Movement therapy

Session 4: Addressing Fears and Insecurities
Understanding Self-Worth:
Exploring the impact of epilepsy on self-esteem
Building resilience and self-acceptance

Handling Social Challenges:
Coping with judgment and discrimination
Developing effective communication strategies
Building a supportive network

Session 5: Managing Emotions and Coping with Diagnosis
Exploring Emotions:
Identifying and understanding common emotions (fear, resentment, fatigue, anger, frustration)
Developing healthy coping strategies

Building Resilience:
Practicing mindfulness and relaxation techniques
Seeking professional support when needed

Session 6: Navigating Social Relationships and Planning for the Future
Discussing Epilepsy with Others:
Effective communication strategies with partners, children, colleagues, and friends
Addressing common concerns and questions

Planning for the Future:
Setting goals and aspirations
Developing a support plan
Exploring self-advocacy

Learn from us & from each other

  • I feel the gratitude! I was feeling a little isolated not knowing too many people who also have epilepsy and being able to communicate has really made me feel connected and supported.

    Misha

    Had epilepsy surgery

  • We’re all in different stages of this, yah know? Some are seizure free, some have loved ones with it, and some are currently in the trenches for the first time and yet it seems like y’all come together to support.

    Rohan

    2 years seizure free

  • Thank you everyone for creating such a supportive community here. I’m so freaking grateful!

    Matsya

    Surgeon who has epilepsy

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Meet your Facilitator

Dr. Porrselvi A.P

PhD in Cognitive Neuroscience; M.Sc. Neuroscience; M.Sc. Counselling and Psychotherapy; B.Sc. Psychology; Certifications in Cognitive Rehabilitation Therapy, Montessori Dementia Care, Learning Difficulties, Cognitive Behavioural Therapy (CBT), Problem Solving Therapy, Gestalt Therapy and Clinical Research.

Dr. Porrselvi A.P., is the founder and neuropsychologist at Unified Brain Health Care, Chennai, India where she heads a passionate group of therapists who form a multi-disciplinary team working towards the neurological and psychological rehabilitation of children, teens, adults, and the elderly. She worked as a Clinical Psychologist (Neuropsychology) at King's College Hospital, London, UK.

She has a decade of experience as a Cognitive Neuropsychologist and is a Chartered Member of the British Psychological Society as well as a HCPC Registered Practiotioner Psychologist. She was awarded the Early Career Award by the International Neuropsychological Society in 2022.

She is the co-chair of the membership committee of Asian Neuropsychological Association. She is a member of the Neurorehabilitation and Cognitive Neurology subsections of the Indian Academy of Neurology and is a member of the Indian Federation of Neurorehabilitation and the International Neuropsychological Society.

FAQs

What are SoulUp groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

Are Group sessions done on video?

Yes, all group sessions are conducted on video via Zoom. While participants are allowed to use pseudonyms - they need to be on video to make the most of the session.

How is confidentiality maintained in Groups?

Confidentiality in Support Groups is maintained using secure meeting links and enabling waiting rooms to control participant access. Participants are bound by mutual confidentiality clause within the group. Also, sessions are not recorded without explicit consent.

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow:

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group through free-flowing conversation coupled with some simple exercises or activities —with the goal of sharing openly, connecting to your emotions and learning specific skills.

Check Out. Participants share what they're taking away from the session.

What's SoulUp's refund policy for Groups?

1. After you have registered for the group and you'd like to opt out:
- Full refund if you cancel 30 days before the group start date.
- 50% refund if you cancel 16-30 days before the group start date.
- No refund if you cancel 0-15 days before the group start date.

2. If SoulUp cancels a group, we will refund the entire signup fee.

3. If SoulUp reschedules a group by more than 2 weeks, we will inform you and give you an option to opt out and get a full refund.

4. SoulUp reserves the right to remove participants from a group if found unsuitable to the group. In such cases participants are given the option of claiming the pro-rata amount left as a refund or using it for another service on SoulUp.

* Are FREE Peer calls available to everyone who signs-up for this group?

You can book 3 Peer calls for FREE as part of signing up for this group.

Please note: This is only available to first-time participants of a SoulUp group (those trying a SoulUp group for the first time).

Can I use multiple discounts while signing up for a group?

You can use only 1 type discount while signing up for a group. Cash backs cannot be coupled with discounts either.

How long has SoulUp been around?

SoulUp was founded in 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are not only effective but also fun, social, and challenging.

Find multiple groups relevant? Bundle up & save!

Save on 2 Groups

What you get:

  1. Sign up for ANY 2 SoulUp groups (except for those priced INR 4000 or more)
  2. For users in India, price of 2 group pack is INR 5500 (instead of INR 7000)
  3. For users outside India, price of 2 group pack is INR 8000 (instead of INR 10,000)
  4. Valid for 6 months: Book slots in any 2 groups within 6 months once you purchase the pack.
Get for 20% off  

Save on 3 Groups

What you get:

  1. Sign up for ANY 3 SoulUp groups (except for those priced INR 4000 or more)
  2. For users in India, price of 3 group pack is INR 7500 (instead of INR 10,500)
  3. For users outside India, price of 3 group pack is INR 11,500 (instead of INR 15,000)
  4. Valid for 12 months: Book slots in any 3 groups within 12 months once you purchase the pack.
Get for 30% off  

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Living Better with Epilepsy

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