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Living with a movement disorder

Living with a movement disorder

A peer support group for people who have been diagnosed with a movement disorder of any kind.

Every Saturday at 12 PM

Confidential | Small group, 6-8 people

Online video Zoom conversations

75-minutes (first 15 mins dedicated to any new joinees)

Led by a Therapist

Program Fee - INR 3000 for ( 6 sessions) India-based participants | INR 6000 for (6 sessions) participants outside India

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Goals of the group

• Understanding and exploring your feelings around your condition.
• Meeting others with similar diagnosis,while discussing both challenges and possible solutions.
• Building confidence and self acceptance to help achieve life goals.

Who is it for?

• Adults (18-40) who have been living with/ have been recently diagnosed with any movement disorder ( Parkinsons disease, dystonia, Essential tremor, Huntington's disease, chorea, FMDs, dykinesia and others)
• Those who feel the need for emotional support for navigating life with a movement disorder.

What will we talk about?

• The Stigma and social isolation

Exploring the attached taboo - fears and insecurities that stem from it
Resolving fatigue from being looked at or treated differently
Uncovering underlying resentment against people who are healthy.

• Challenges in daily life

Exploring the struggles and frustrations of daily life, all the while managing symptoms.
Managing pent up anger and grief over loss of independence and limitations with things you can/cannot do anymore.
Coping with feelings of sadness and hopelessness.
Challenges of treatment and side effects of possible life long medication/ surgery

• Family and Love
Exploring support and the lack of it from caregiver/spouse/family
Discussing the impact on relationships - romantic and otherwise

• Re- building YOU
Learning to rebuild your self esteem and confidence in order to achieve your goals.
Learning to love the new you and truly accepting it.

  • Its great to finally have someone really understand what iI feel! Cannot be thankful enough for this group!

    Kshitija

    37, Early onset Parkinson's

  • I didnt think I would find the support I was looking for, before I joined this group. It proved to be a turning point for me! Thanks SoulUp

    Raj

    43, Essential tremor

  • I was shy and reserved even before I was diagnosed and then things became a lot worse. This group reminded me of my strengths and all the things that I can continue to cherish while living my best life!

    Kavya

    39, Restless leg syndrome

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FAQs

What are soulUp groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group in a free-flowing conversation—with the goal of sharing openly, talking honestly, and deep emotional connection.

Check Out. Participants share what they're taking away from the session.

What am i going to get out of this?

Participants say that they feel heard, understood, more in control, and a feeling that you’ve got people rooting for you. By talking about your emotions and what's going on in your life, you'll realise that you're not alone and get ideas for how to improve your situation.

How long has soulup been around?

SoulUp was founded in Feb 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are effective, but also fun, social, and challenging.

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