• movement disorders support group, emotional support for neurological disorders, support group for movement disorders, Parkinson's support group, Parkinsons group, Online group for Parkinson's
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Living with Parkinson's

Living with Parkinson's

A peer support group for people who have been diagnosed with a movement disorder of any kind(Parkinson's, dystonia, tremor).

Starts on 11th May, 2024

6 Zoom sessions | Saturday at 10:30 AM IST | 75 minutes

Unlimited Peer Calls Included

Confidential | Small group, 6-8 people

Led by a Therapist

Program Fee - INR 3500 for India-based participants | INR 5500 for participants outside India | Unlimited Peer Calls Included

View full details

Goals of the group

• Understanding and exploring your feelings around your condition.
• Meeting others with similar diagnosis,while discussing both challenges and possible solutions.
• Building confidence and self acceptance to help achieve life goals.

Who is it for?

• Adults who have been living with/ have been recently diagnosed with any movement disorder ( Parkinsons disease, dystonia, Essential tremor, Huntington's disease, chorea, FMDs, dykinesia and others)

• Those who feel the need for emotional support for navigating life with a movement disorder.

Glimpse of the regime

Session 1: The challenges of daily Life

1.Navigating physical challenges/ bodily limitations
2.Ways of coping with seeking help/ support
3.Redefining interdependence

Session 2: Navigating Work

1.What does work mean for you?
2.What roles can you take up- exploring entrepreneurship
3.Requesting accommodations in the workplace

Session 3: Navigating Family & Relationships | Session 4: Navigating the Silence & Stigma

1.Receiving support from family / friends or the lack of it
2.Renegotiating your role in the family/ friendships
3.Navigating romantic relationships / marriages

1.Exploring the silence / stigma about the disorders & the systems that maintain it
2.Discussing how the stigma / silence impacts you
3.You as an advocate for movement disorders

Session 5: Navigating Emotions | Session 6: Rebuilding You

1.Holding space for difficult emotions associated with the disorder
2.Attending to difficult emotions such as guilt/ anger
3.Relaxation and emotional release techniques

1.Exploring other identities and roles- who are you along with the disorder?
2.What do these roles/ identities mean for you?
3.The way ahead- Any additional roles / identities you want to take on in the future?

Learn from us & from each other

  • Its great to finally have someone really understand what iI feel! Cannot be thankful enough for this group!

    Kshitija

    37, Early onset Parkinson's

  • I didnt think I would find the support I was looking for, before I joined this group. It proved to be a turning point for me! Thanks SoulUp

    Raj

    43, Essential tremor

  • I was shy and reserved even before I was diagnosed and then things became a lot worse. This group reminded me of my strengths and all the things that I can continue to cherish while living my best life!

    Kavya

    39, Restless leg syndrome

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Meet your Facilitator

Shivangi Anil

"Shivangi is a psychotherapist who works with Indian adults globally to support them achieve better mental health. Some of the concerns she specializes in include workplace mental health, burnout , stress, relationship conflict, anger management, body image concerns, emotional wellness, depression and anxiety

Shivangi holds a bachelor's degree in Psychology from Lady Shri Ram college for Women and a Masters degree in Clinical Psychology from Ambedkar University, Delhi. She is registered with the counselors council of India. While she is trained in a variety of therapeutic techniques including cognitive behavioral therapy, rational emotive behavioral therapy, she considers narrative practice and solution focused brief therapy her home base. Shivangi is trauma informed, queer and disability affirmative in her practice.

Shivangi happens to live with Cerebral Palsy quadriplegia. As an adult living with a disability in India, Shivangi is an advocate not just for mental health but also inclusion and disability rights. She hopes to create a space to talk about all things mental health, disability and its intersection through her support groups.

When not working with clients or reading about mental health concerns, you can find her binge watching videos on skincare and curly hair care or a bollywood movie. "

FAQs

What are SoulUp Groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group in a free-flowing conversation—with the goal of sharing openly, talking honestly, and deep emotional connection.

Check Out. Participants share what they're taking away from the session.

What am I going to get out of this?

Participants say that they feel heard, understood, more in control, and a feeling that you’ve got people rooting for you. By talking about your emotions and what's going on in your life, you'll realise that you're not alone and get ideas for how to improve your situation.

How long has SoulUp been around?

SoulUp was founded in Feb 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are effective, but also fun, social, and challenging.

What is SoulUp's refund policy on Groups?

1. After you have registered for the group and you'd like to opt out:
- Full refund if you cancel 30 days before the group start date.
- 50% refund if you cancel 16-30 days before the group start date.
- No refund if you cancel 0-15 days before the group start date.

2. If SoulUp cancels a group, we will refund the entire signup fee.

3. If SoulUp reschedules a group by more than 2 weeks, we will inform you and give you an option to opt out and get a full refund.

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  4. Valid for 12 months: Book slots in any 3 groups within 12 months once you purchase the pack.
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Navigating life with a Movement disorder

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