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Epilepsy patient support group.

Epilepsy patient support group.

Join our 6-month epilepsy support group designed to empower, educate, and uplift. Through expert-led workshops, Q&A sessions, creative therapies, and open conversations, you'll find emotional strength, practical tools, and a compassionate community by your side.

Join our Epilepsy community!

Starts February, 2025

6 month group | 24 weekly sessions

Online on Zoom | Saturdays at 12pm | 75 mins

Confidential | Group of ~20 people

Group Type: Support Group

Led by Therapists | Doctors | Other experts

Membership Fee - INR 1000 (India) | USD 50 (Outside India) for 6 months

View full details

Week-wise schedule #1-12

  • Week 1: Support Group Session

    Open discussions around the emotional and psychological challenges of living with epilepsy. Facilitated by a therapist/ peer expert, participants will share experiences, learn coping strategies, and support one another in a safe, understanding environment.

  • Week 2: Journaling Workshop

    Why it helps: Journaling promotes self-reflection, emotional expression, and can aid in tracking patterns and triggers.Session Idea: Guided journaling prompts followed by voluntary sharing.

  • Week 3: Doctor Q&A

    Get insights on key medical aspects of epilepsy, including diagnosis, treatment options, seizure management, and lifestyle considerations. Participants will have the opportunity to ask questions and receive professional advice tailored to living with epilepsy.

  • Week 4: Art therapy

    Why it helps: Creative expression through art can reduce stress and improve emotional well-being.Session Idea: A guided art session where participants create visual representations of their emotions.

  • Week 5: Yoga & Breathwork

    Why it helps: Yoga and breathwork promote relaxation, improve focus, and can reduce seizure frequency.Session Idea: A certified yoga instructor guides participants through simple poses and breathing exercises

  • Week 6: Support Group Session

    Open discussions around the emotional and psychological challenges of living with epilepsy. Facilitated by a therapist/ peer expert, participants will share experiences, learn coping strategies, and support one another in a safe, understanding environment.

  • Week 7: Doctor Q&A

    Get insights on key medical aspects of epilepsy, including diagnosis, treatment options, seizure management, and lifestyle considerations. Participants will have the opportunity to ask questions and receive professional advice tailored to living with epilepsy.

  • Week 8: Music Therapy

    Why it helps: Music has a calming effect on the mind, reducing anxiety and promoting relaxation.Session Idea: A session involving listening to soothing music and exploring rhythmic activities.

  • Week 9: Support Group Session

    Open discussions around the emotional and psychological challenges of living with epilepsy. Facilitated by a therapist/ peer expert, participants will share experiences, learn coping strategies, and support one another in a safe, understanding environment.

  • Week 10: Nutrition Workshop

    Planning Balanced, Epilepsy-Friendly MealsWhy it helps: Proper nutrition can improve overall well-being and reduce seizure triggers.Session Idea: Nutritionist-led workshop with meal planning tips.

  • Week 11: Doctor Q&A

    Get insights on key medical aspects of epilepsy, including diagnosis, treatment options, seizure management, and lifestyle considerations. Participants will have the opportunity to ask questions and receive professional advice tailored to living with epilepsy.

  • Week 12: Stress Relief Workshop

    Why it helps: Learning simple, practical techniques like progressive muscle relaxation (PMR) and aromatherapy can help reduce stress.
    Session idea: A hands-on workshop teaching relaxation techniques participants can use daily.

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Week-wise schedule #13-24

  • Week 13: Resilience Building Workshop

    Why it helps: Structured coping strategies enhance participants' ability to handle stress and uncertainty.Session Idea: Interactive workshop with role-play and strategy development.

  • Week 14: Support Group Session

    Open discussions around the emotional and psychological challenges of living with epilepsy. Facilitated by a therapist/ peer expert, participants will share experiences, learn coping strategies, and support one another in a safe, understanding environment.

  • Week 15: Doctor Q&A

    Get insights on key medical aspects of epilepsy, including diagnosis, treatment options, seizure management, and lifestyle considerations. Participants will have the opportunity to ask questions and receive professional advice tailored to living with epilepsy.

  • Week 16: Memory Enhancement Workshop

    Boosting Cognitive FunctionWhy it helps: Memory issues are common in epilepsy, and improving cognitive function enhances daily living.Session Idea: Interactive session with memory games and exercises.

  • Week 17: Mindful Coloring Workshop

    Why it helps: Mindful coloring can reduce stress, improve focus, and promote relaxation.
    Session idea: A guided session where participants color mandalas or nature-inspired patterns, accompanied by soothing music.

  • Week 18: Support Group Session

    Open discussions around the emotional and psychological challenges of living with epilepsy. Facilitated by a therapist/ peer expert, participants will share experiences, learn coping strategies, and support one another in a safe, understanding environment.

  • Week 19: Virtual Book Club

    Why it helps: Reading and discussing books promotes social interaction, reduces isolation, and fosters a sense of community.
    Session idea: A monthly book club where participants read and discuss a chosen book or short story.

  • Week 20: Doctor Q&A

    Get insights on key medical aspects of epilepsy, including diagnosis, treatment options, seizure management, and lifestyle considerations. Participants will have the opportunity to ask questions and receive professional advice tailored to living with epilepsy.

  • Week 21: Gratitude Circle

    Why it helps: Practicing gratitude and sharing positive experiences can improve mood and foster a sense of well-being.
    Session idea: A session where participants reflect on things they’re grateful for and share positive moments or achievements.

  • Week 22: Support Group Session

    Open discussions around the emotional and psychological challenges of living with epilepsy. Facilitated by a therapist/ peer expert, participants will share experiences, learn coping strategies, and support one another in a safe, understanding environment.

  • Week 23: Sleep Hygiene MasterClass

    Why it helps: Poor sleep is a major seizure trigger, and understanding sleep hygiene can help patients improve their rest.
    Session idea: A workshop led by a sleep specialist, offering practical tips and tools to improve sleep quality.

  • Week 24: Doctor Q&A

    Get insights on key medical aspects of epilepsy, including diagnosis, treatment options, seizure management, and lifestyle considerations. Participants will have the opportunity to ask questions and receive professional advice tailored to living with epilepsy.

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Learn from us & from each other

  • I feel the gratitude! I was feeling a little isolated not knowing too many people who also have epilepsy and being able to communicate has really made me feel connected and supported.

    Misha

    Had epilepsy surgery

  • We’re all in different stages of this, yah know? Some are seizure free, some have loved ones with it, and some are currently in the trenches for the first time and yet it seems like y’all come together to support.

    Rohan

    2 years seizure free

  • Thank you everyone for creating such a supportive community here. I’m so freaking grateful!

    Matsya

    Surgeon who has epilepsy

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FAQs

What are SoulUp groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group through free-flowing conversation coupled with some simple exercises or activities —with the goal of sharing openly, connecting to your emotions and learning specific skills

Check Out. Participants share what they're taking away from the session.

How is confidentiality maintained in Groups?

Confidentiality in Support Groups is maintained using secure meeting links and enabling waiting rooms to control participant access. Participants are bound by mutual confidentiality clause within the group. Also, sessions are not recorded without explicit consent.

Are Group sessions done on video?

Yes, all group sessions are conducted on video via Zoom. While participants are allowed to use pseudonyms - they need to be on video to make the most of the session.

What is SoulUp's refund policy for Groups?

1. After you have registered for the group and you'd like to opt out:
- Full refund if you cancel 30 days before the group start date.
- 50% refund if you cancel 16-30 days before the group start date.
- No refund if you cancel 0-15 days before the group start date.

2. If SoulUp cancels a group, we will refund the entire signup fee.

3. If SoulUp reschedules a group by more than 2 weeks, we will inform you and give you an option to opt out and get a full refund.

4. SoulUp reserves the right to remove participants from a group if found unsuitable to the group. In such cases participants are given the option of claiming the pro-rata amount left as a refund or using it for another service on SoulUp.

Can I use multiple discounts while signing up for a group?

You can use only 1 type discount while signing up for a group. Cash backs cannot be coupled with discounts either.

* Are FREE Peer calls available to everyone who signs-up for this group?

You can book 3 Peer calls for FREE as part of signing up for this group.

Please note: This is only available to first-time participants of a SoulUp group (those trying a SoulUp group for the first time).

How long has SoulUp been around?

SoulUp was founded in 2022 by Punita Mittal and Mahak Maheshwari - a team of IIT Delhi and IIT Bombay with more than 20 years of combined healthcare experience. SoulUp is redefining mental health through groups that are not only effective but also fun, social, and challenging.

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