Epilepsy support groups

An eclectic collection of support group spaces across multiple themes.  Limited slots available!

Therapist led | 4-6 sessions | Done in small groups

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When individuals hear about epilepsy, they tend to associate it with seizures: the sudden falls, the blank stare, the flashing lights. But to the ones who experience it, epilepsy is not just about the seizures. It's more about the moments in between: the fear of uncertainty, the impact on professional lives, and the constant concern about social acceptance. It's a condition that quietly weaves itself into every corner of a person's life, altering social relationships and mental state of mind. While medications treat the physical seizures, the psychological issues—loneliness, embarrassment, and mental fatigue—often go unnoticed. This is where support groups come in as an important part of healing and getting back to normalcy.

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Interested in multiple groups? Access at 60% off | Valid for 1 yr

What you get:

  • Unlimited Support Groups – Join any eligible group throughout the year at no extra cost.
  • Exclusive Weekly Series – Join our weekly Women/Men Unfiltered sessions on relationships, career, identity, and mental health.
  • 24 Free Peer Calls – Connect one-on-one with other members for support and shared experiences.
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Why Support Groups Matter

When one is diagnosed with epilepsy, there is often a profound feeling of loss:

of control, of certainty, and of identity. Most people express this in the form of immense distress, but it often comes in silence without public acknowledgment. Support groups provide the essential space to speak up and break that silence, fostering connection and understanding instead of shame.

Dealing with the Hidden Side of Epilepsy

Epilepsy carries a weight that isn't always visible to the outside world. Support groups address these layers:

Professional anxiety:

Discussing the fear of losing job opportunities or facing discrimination due to a diagnosis.

Social isolation:

Sharing the worry of being treated differently by friends or strangers after a seizure.

Emotional fatigue:

Finding a place to express the mental drain of living with constant medical uncertainty.

How Groups Help You Navigate Life with Epilepsy

Support groups are not just about seizure management; they support people in coping with a whole range of issues with empathy and resources. They offer:

Solidarity:

Realizing you aren't the only one asking "What if I have a seizure in public?".

Confidence building:

Reclaiming your voice and learning to express yourself fully once more despite the condition.

Mental health support:

Addressing the unnoticed psychological toll like the constant fear of the next episode.

What Does an Epilepsy Support Group Look Like?

SoulUp's cohorts are intentionally small, with just 5 to 6 members, so every member can find space to speak and be heard. Every cohort is guided by experienced therapists and psychologists who host a safe and well-held environment. These aren't casual conversations; they are structured sessions that blend therapy, peer support, and real-world tools for transformation.

Who Can Join?

Anyone affected by epilepsy is welcome, whether you:

Live with it yourself; Have been recently diagnosed; Are navigating the long-term realities; Or care for someone who does. Our Zoom meetings bring this emotional care within reach, no matter where you are or what your condition keeps you from doing in the outside world.

FAQs

What are SoulUp Groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group in a free-flowing conversation—with the goal of sharing openly, talking honestly, and deep emotional connection.

Check Out. Participants share what they're taking away from the session.

What am I going to get out of this?

Participants say that they feel heard, understood, more in control, and a feeling that you’ve got people rooting for you. By talking about your emotions and what's going on in your life, you'll realise that you're not alone and get ideas for how to improve your situation.