Support Groups for People with Epilepsy in India.

Living with epilepsy affects far more than just the physical. This collection includes a group for epilepsy specifically, alongside groups for anxiety, chronic illness, caregiver support, and more.

Groups are: Therapist-led | Weekly Zoom Sessions | Done in small groups

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When individuals hear about epilepsy, they tend to associate it with seizures: the sudden falls, the blank stare, the flashing lights. But to the ones who experience it, epilepsy is not just about the seizures. It's more about the moments in between. The fear of uncertainty, like "What if I get a seizure while crossing the road?". The impact it has on their professional lives, "Will I lose a job opportunity due to my diagnosis?" The constant concern about social acceptance,"Will they treat me differently?" These are not hypothetical questions; they are the real, day-to-day concerns of people with epilepsy.

It's a condition that quietly weaves itself into every corner of a person's life, altering their social relationships, physical health, and mental state of mind. While neurologists and medications treat the seizures, the psychological issues that come with them all too often go unnoticed. The loneliness, the embarrassment, the mental fatigue. Having more open conversations about them is vital, where you can express your honest thoughts and feelings. That's where support groups come in. It's an important part of healing, learning, and getting back to normalcy with epilepsy.

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    Loneliness Support Group

    Loneliness Support Group

    Starts 22nd Jul

    Loneliness Support Group

    Learn 6 strategies to find joy in going solo!

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    Dating with Chronic Illness

    Dating with Chronic Illness

    Early Bird

    Dating with Chronic Illness

    Reflective support space to explore dating & relationships while managing a chronic health condition

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    Women Unfiltered

    Women Unfiltered

    Every Tuesday

    Women Unfiltered

    A support group for women to explore themes like work, relationships, family, ambitions and more.

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    Parenting Kids with Medical Needs

    Parenting Kids with Medical Needs

    Early Bird

    Parenting Kids with Medical Needs

    Support space for parents and caregivers navigating the challenges of complex child care.

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    Chronic Pain Support Group

    Chronic Pain Support Group

    Starts 30th Jul

    Chronic Pain Support Group

    Exploring life, identity, and hope beyond chronic pain.

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    Caregiving Support Group

    Caregiving Support Group

    33% off | Starts 13th Jul

    Caregiving Support Group

    Group for caregivers to come together when feeling overwhelmed and isolated.

Why do Support Groups Matter?

When one is diagnosed with epilepsy, there is always this profound feeling of loss: of control, of certainty, of identity. Most people express it in the form of immense distress, but it comes in silence, without public grieving or obvious acknowledgment. Some encourage a quiet approach to this condition, but it's essential to speak up and break the silence, fostering connection and understanding instead of shame. Looking at it from a lived experience perspective, Rhea, a 27-year-old graphic designer, started having seizures in her early 20s. "I kept it from my work for months," she confesses. "I didn't want people to think I was incapable. But every day was like walking on eggshells. What if it happened during a meeting?" For Rhea, being part of a support group was a turning point. "It was the first place I didn't have to fake being fine," she says. "Hearing other people talk about their public seizure fears, medication side effects, and dating made me human again." Support groups assist in three powerful ways:

Emotional Validation: Epilepsy is an undeniably isolating condition that creates a significant barrier between individuals and their connection to the world. Support groups give the sheer relief of hearing, "Me too."

Valuable Assistance: Members usually exchange tips and tricks from everyday life to monitor seizures well, how to discuss accommodations with HR, or how to travel or parent while living with epilepsy.

Community and Hope: Witnessing others who have progressed further in their journey can fill us with inspiration and a fresh perspective. It reminds us that growth is possible and encourages us to keep pushing forward. Someone newly diagnosed can gain strength from someone who has been living with epilepsy for a decade and is thriving.

The Unseen Challenges Around Epilepsy

Most of the discussions usually end at seizure management, but individuals don't realize that the actual effects run deeper. Support groups help to monitor the barriers that accompany the condition:

Anxiety, depression, and PTSD are common, especially among individuals who have experienced traumatic seizure episodes.

Career interruptions usually lead to long leaves or discrimination when employers do not understand their condition.

From dating to the strain it imposes on caregivers, epilepsy tints all relationship dynamics.

Epilepsy is still widely misunderstood around the globe. Myths proliferate: Some believe it's contagious, or linked with mental weakness or instability.

Support groups are not all about seizure management. They support people in coping with the whole range of these issues with empathy, resources, and solidarity.

Stories of Hope and Healing

Real experiences from people like Rhea show the transformative power of support groups. These aren't just theoretical benefits - they're lived realities of people finding their voice, reclaiming their confidence, and building meaningful connections despite their diagnosis.

Who Can Join?

Anyone who is affected by epilepsy, whether you live with it, have just been diagnosed, are navigating the long term, or care for someone who does, is welcome. There's a place for where you are on your journey. At SoulUp, we understand that care is not one-size-fits-all.

  • Our Zoom meetings bring emotional care within reach, no matter where you are or what your condition keeps you from doing in the outside world.
  • These cohorts are intentionally small, just 5 to 6 members per group, so every member can find space to speak, connect, and be heard.
  • Every cohort is guided by experienced therapists and psychologists, who host a safe and well-held environment.
  • These aren't casual conversations. These are structured, significant sessions that blend therapy, peer support, and real-world tools for recovery and transformation.

Why Does It Matter?

Having epilepsy means living in a world that doesn't necessarily understand you all the time. But you don't have to walk it alone. You gain the opportunity to reclaim your voice and express yourself fully once more. Your confidence and life are enriched not despite your condition, but because of it, especially with the support of the right people by your side. At SoulUp, we know that healing occurs with connections.

Interested in multiple groups? Access at 60% off | Valid for 1 yr

What you get:

  • Unlimited Support Groups – Join any eligible group throughout the year at no extra cost.
  • Exclusive Weekly Series – Join our weekly Women/Men Unfiltered sessions on relationships, career, identity, and mental health.
  • 24 Free Peer Calls – Connect one-on-one with other members for support and shared experiences.
See details!  

FAQs

What are SoulUp Groups?

At SoulUp, you'll meet people who get what you're going through and might be living some of the same realities. People looking for extraordinary conversations, just like you.

✔️ Small group, 6-8 people

✔️ Every meeting led by a world-class facilitator

✔️ Weekly 75-minute online video sessions

What happens in a group session?

While the format can vary as per topic, here’s a flow that most sessions follow

Check In. Participants check-in with each others' feelings and answer the prompt given by the facilitator if any.

Conversation. Your facilitator will guide the group in a free-flowing conversation—with the goal of sharing openly, talking honestly, and deep emotional connection.

Check Out. Participants share what they're taking away from the session.

What am I going to get out of this?

Participants say that they feel heard, understood, more in control, and a feeling that you’ve got people rooting for you. By talking about your emotions and what's going on in your life, you'll realise that you're not alone and get ideas for how to improve your situation.

Narcissistic Abuse Support Group → ADHD Support Group → BPD Support Group → Porn Addiction Support Group → Conscious Coupling → Divorce Support Group → Grief Support Group → PTSD Support Group → Childfree: Yes or No? → Emotional Regulation Support Group → Emotional Eating Support Group → OCD Support Group → Bipolar Disorder Support Group → Single Parenting Support Group → ADHD Parent Support Group →
ADHD Support Groups → Divorce Support Groups → Relationship Support Groups → Skill-based Groups → Addiction Support Groups → PTSD Support Groups → Emotional Regulation Support Groups → Support Groups for Women → Support Groups for Men → Patient Support Groups → Groups for Life Decisions → Support Groups for BPD → Support Groups for Depression → Postpartum Depression Support Groups → Groups for Couple Relationships →
Therapists for PTSD/Trauma → Divorce Therapists → Therapists For Emotional Regulation → Therapists For ADHD → Couples Therapists → Therapists For Depression → Therapy For Borderline Personality Disorder → Therapists For Bipolar Disorder → Therapy For Anxiety → Therapists For Loneliness → Therapy For OCD → Therapists For Infidelity → Therapists For Postpartum Depression → Therapists for Grief → Therapists for Retroactive Jealousy → Therapists for Narcissistic Abuse → Therapists for Procrastination → Therapists for Work-Life Balance → Therapists For Gambling Addiction → Therapists For Separation Anxiety → Therapists for Self-Esteem → Therapists For Social Media Addiction → Therapists for BDD → Therapists for Seniors →
Anxiety → Porn Addiction → Overthinking → Narcissistic Abuse → Depression → ADHD → Borderline Personality Disorder → Couple Relationships → PTSD → Emotional regulation → Retroactive jealousy → Sleep Issues → Attachment Style → Grief → Narcissism → Postpartum Depression → Procrastination → Men's Mental Health →
Humanistic/Person Centred Approach → Rational Emotive Behaviour Therapy (REBT) → Acceptance and Commitment Therapy (ACT) → Expressive Arts → Dialectical Behaviour Therapy (DBT) → Internal Family Systems (IFS) →
Pregnancy Loss Support Group → Support Groups for Loneliness → Support Groups for Caregivers → Support Groups for New Moms → Support Groups for Adoption → Support Group for Drug Addiction → Support Group for Empty Nest → Support Groups for Gambling Addiction → Support Groups for Heartbreak → Support Groups for Infidelity → Support Groups for Procrastination → Support Groups for Retroactive Jealousy →